Corresponding Author

  • Dr Azzarina Zakaria

    • Universiti Teknologi MARA
    • Malaysia

Author

  • Kenji Ishida

    • University of Tokyo
    • Japan

  • Khairul Saidah Abas Azmi

    • Toitū Envirocare, Christchurch
    • New Zealand

Abstract

Mothers of children with special needs may encounter difficulties sustaining paid employment when caregiving demands intersect with working hours, school and service arrangements, and children's changing needs. This study examines how mothers negotiate paid work and caregiving within their caregiving circumstances. An exploratory qualitative design was employed with ten mothers whose children attended an elementary special support school in Japan. Data were generated through written interviews comprising 18 open-ended questions and analysed using reflexive thematic analysis. Four interrelated themes were developed: conditions of work-care incompatibility and its consequences; negotiating employment through trade-offs and adaptation; care and workplace support as enabling conditions; and the continuing value of paid work. The findings show that difficulties in combining employment and caregiving were shaped not only by the demands of care but also by the timing and unpredictability of children's needs and care arrangements. Mothers responded by adjusting working hours, employment arrangements and career expectations, although these adaptations reflected different combinations of constraint, caregiving priorities and accommodation to children's needs. Family, formal and workplace support expanded employment possibilities when sufficiently compatible with mothers' and children's circumstances. Despite these difficulties, paid work continued to hold financial, personal or professional value for several mothers. The study contributes an experience-centred understanding of work-care negotiation by showing how caregiving demands, employment conditions and available support shape the forms of employment that remain feasible while paid work may continue to be a valued part of mothers' lives.

Keywords

References

  • Al-Oraini, B.S. (2024). Motherhood, disability, and employment: Understanding the workplace experiences of mothers of children with intellectual disabilities. International Journal of Business Administration, 15(3), 63-77. DOI: https://doi.org/10.5430/ijba.v15n3p63
  • Anderson, D., Dumont, S., Jacobs, P., & Azzaria, L. (2007). The personal costs of caring for a child with a disability: A review of the literature. Public Health Reports, 122(1), 3–16. DOI: https://doi.org/10.1177/003335490712200102
  • Braun, V., & Clarke, V. (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328–352. DOI: https://doi.org/10.1080/14780887.2020.1769238
  • Braun, V., & Clarke, V. (2024). Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guidelines (RTARG). Palliative Medicine, 38(6), 608–616. DOI: https://doi.org/10.1177/02692163241234800
  • Brekke, I., & Alecu, A. (2023). The health of mothers caring for a child with a disability: A longitudinal study. BMC Women’s Health, 23(1), 639. DOI: https://doi.org/10.1186/s12905-023-02798-y
  • Cheshire, A., Barlow, J. H., & Powell, L. A. (2010). The psychosocial well-being of parents of children with cerebral palsy: A comparison study. Disability and Rehabilitation, 32(20), 1673–1677. DOI: https://doi.org/10.3109/09638281003649920
  • Dhungel, B., Kachi, Y., Kato, T., Ochi, M., Nagayoshi, M., Gilmour, S., & Takehara, K. (2023). Association of paternal factors with mothers' employment postchildbirth. Journal of Occupational Health, 65(1), e12419. DOI: https://doi.org/10.1002/1348-9585.12419
  • Ejiri, K., & Matsuzawa, A. (2019). Factors associated with employment of mothers caring for children with intellectual disabilities. International Journal of Developmental Disabilities, 65(4), 239–247. DOI: https://doi.org/10.1080/20473869.2017.1407862
  • Ejiri, K., & Matsuzawa, A. (2023). What work environment and childcare services mothers of children with disabilities consider are necessary for their employment: A questionnaire survey on mothers caring for school-aged children with intellectual disabilities. Journal of Ibaraki Christian University II, Social and Natural Sciences, 57, 51–59.
  • Elliott, B. E., & Luker, K. (1997). The experiences of mothers caring for a child with severe atopic eczema. Journal of Clinical Nursing, 6, 241-247. DOI: https://doi.org/10.1111/j.1365-2702.1997.tb00310.x
  • Heaton, J., Noyes, J., Sloper, P., & Shah, R. (2006). The experiences of sleep disruption in families of technology-dependent children living at home. Children & Society, 20, 196-208. DOI: https://doi.org/10.1002/CHI.881
  • Moriwaki, M., Yuasa, H., Kakehashi, M., Suzuki, H., & Kobayashi, Y. (2022). Impact of social support for mothers as caregivers of cerebral palsy children in Japan. Journal of Pediatric Nursing, 63, e64–e71. DOI: https://doi.org/10.1016/j.pedn.2021.10.010
  • Newman, D. M., & Fawcett, J. (1995). Caring for a young child in a body cast: Impact on the caregiver. Orthopaedic Nursing, 14, 41-46. DOI: https://doi.org/10.1097/00006416-199501000-00008
  • Opoku, M. P., Ashour, S., Shah, H., Alameri, S., Aldarmaki, A., Gamil, A., Alameri, R., & Algheilani, F. (2025). Lived experiences of Arabic working mothers raising children with disabilities: Navigating rehabilitation and support services. Disability & Society, 40(6), 1669–1689. DOI: https://doi.org/10.1080/09687599.2024.2368564
  • Osmančević Katkić, L., Lang Morović, M., & Kovačić, E. (2017). Parenting stress and a sense of competence in mothers of children with and without developmental disabilities. Hrvatska Revija za Rehabilitacijska Istraživanja, 53(Supplement), 63–76.
  • Østerud, K. L., Skjønsberg, E. E., & Albertini, F. E. (2024). “My child is my job now” - Care, work and careers of mothers with disabled children in the Norwegian welfare state. Social Science & Medicine, 355. DOI: https://doi.org/10.1016/j.socscimed.2024.117097
  • Porter, N., & Loveland, K. A. (2019). An integrative review of parenting stress in mothers of children with autism in Japan. International Journal of Disability, Development and Education, 66(3), 249–272. DOI: https://doi.org/10.1080/1034912X.2018.1439159
  • Raina, P., O’Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., Swinton, M., Zhu, B., & Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115(6), e626–e6. DOI: https://doi.org/10.1542/peds.2004-1689
  • Saputra, A. A., & Karyono. (2014). The meaning of work towards a mother who has an autistic child. Jurnal EMPATI, 3(2), 47–55.
  • Tanaka, M., Okudaira, H., Sakka, M., & Yamaguchi, S. (2026). Workplace norms and paternal involvement in childcare (CREPE Discussion Paper No. 202). Center for Research and Education for Policy Evaluation, The University of Tokyo.
  • Vinck, J., & Van Lancker, W. (2020). An intersectional approach towards parental employment in families with a child with a disability: The case of Belgium. Work, Employment and Society, 34(2), 228–261. DOI: https://doi.org/10.1177/0950017019872648
  • Wondemu, M.Y., Joranger, P., Hermansen, Å., & Brekke, I. (2022). Impact of child disability on parental employment and labour income: a quasi-experimental study of parents of children with disabilities in Norway. BMC Public Health, 22,1813. DOI: https://doi.org/10.1186/s12889-022-14195-5
  • Yamaoka, Y., Tamiya, N., Moriyama, Y., Sandoval Garrido, F. A., Sumazaki, R., & Noguchi, H. (2015). Mental health of parents as caregivers of children with disabilities: Based on a Japanese nationwide survey. PLOS ONE, 10(12), e0145200. DOI: https://doi.org/10.1371/journal.pone.0145200
  • Yoosefi Lebni, J., Ziapour, A., Khosravi, B., & Rahimi Khalifeh Kandi, Z. (2021). Lived experience of mothers of children with disabilities: A qualitative study of Iran. Journal of Public Health, 29(5), 1173–1179. DOI: https://doi.org/10.1007/s10389-020-01215-0

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How to Cite

Zakaria, A., Ishida, K., & Abas Azmi, K. S. (2026). Negotiating Paid Work and Caregiving: Experiences of Japanese Mothers of Children with Special Needs. Information Management and Business Review, 18(4(I), 304-315. https://doi.org/10.22610/imbr.v18i4(I).4944

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Copyright (c) 2026 Dr Azzarina Zakaria (Corresponding Author); Kenji Ishida, Khairul Saidah Abas Azmi (Author)

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Vol. 18 No. 4(I) (2026) Title unavailable View issue contents

Published

2026-10-26

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